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Genetic Alliance UK
Results: 131

#	Item
11	Welsh Government Corporate slide master Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2014-07-23 11:46:25 Medical terms Medical ethics Rare disease Health care Medical diagnosis Genetic testing Genetic Alliance UK Chronic Medicine Health Epidemiology
12	EN COUCIL OF THE EUROPEA UIO Council Recommendation on Add to Reading List Source URL: www.consilium.europa.eu Language: English - Date: 2009-06-09 04:44:05 Rare disease Orphan drug Public health Chronic Genetic Alliance UK European Organization for Rare Diseases Health Health economics Epidemiology
13	BENEFITS OF MEMBERSHIP YOUR MEMBERSHIP AT WORK QUARTERLY NEWSLETTER • Keeps members informed and updated Add to Reading List Source URL: www.gsnv.org.au Language: English - Date: 2013-10-29 01:22:13 Cancer research Genetic testing Peer support Sense Medical genetics National Society of Genetic Counselors Genetic Alliance UK Medicine Health Medical ethics
14	BENEFITS OF MEMBERSHIP Your membership at work Quarterly newsletter • Keeps members informed and updated Add to Reading List Source URL: www.gsnv.org.au Language: English - Date: 2014-08-18 00:37:08 Cancer research Genetic testing Sense Medical genetics Peer support National Society of Genetic Counselors Genetic Alliance UK Medicine Health Medical ethics
15	IT’S NOT RARE TO HAVE A RARE DISEASE Add to Reading List Source URL: www.gov.scot Language: English - Date: 2014-07-08 10:07:06 NHS Scotland National Health Service Health informatics NHS England NHS National Services Scotland Health care Genetic Alliance UK Scottish Government Health and Social Care Directorates Telehealth Health Medicine Healthcare in Scotland
16	Rare Disease Impact Report: Insights from patients and the medical community April 2013 This report was commissioned by Shire and developed in collaboration with an external advisory board. Add to Reading List Source URL: www.shire.com Language: English - Date: 2014-05-27 04:58:19 Medical terms Family Epidemiology Caregiver Genetic Alliance UK Medical error Amyotrophic lateral sclerosis Medical diagnosis Nephrology Medicine Health Rare diseases
17	Press Release - EURORDIS welcomes the final adoption by the European Council of the proposed Council Recommendation on European Action in the field of Rare Diseases Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2009-08-29 11:21:40 Rare disease Orphan drug Public health Methadone European Union Rare Disease Day Genetic Alliance UK Health Health economics European Organization for Rare Diseases
18	Dear [insert name of parliamentary candidate], Pledge for Patients: Please show your support for patients affected by rare, genetic and undiagnosed conditions I am/We are writing to you as the [Labour/Conservative/Li Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2015-03-19 13:37:45 Health Rare diseases Genetic Alliance UK
19	STATEMENT ON THE EP REPORT ON THE PROTECTION OF PERSONAL DATA On behalf of the European rare disease community at large, we hereby express our deep concern on the Draft Report, released on 16 January 2013, by Jan Philipp Add to Reading List Source URL: www.publichealth.ox.ac.uk Language: English - Date: 2013-08-01 07:41:46 Public health Orphan drug Public health genomics Genetic Alliance UK Health Health economics Rare disease
20	STATEMENT ON THE EP REPORT ON THE PROTECTION OF PERSONAL DATA On behalf of the European rare disease community at large, we hereby express our deep concern on the Draft Report, released on 16 January 2013, by Jan Philipp Add to Reading List Source URL: www.dph.ox.ac.uk Language: English - Date: 2013-08-01 07:41:46 Public health Orphan drug Public health genomics Genetic Alliance UK Health Health economics Rare disease